Dan Pezzetta 908-***-**** adtdcg@r.postjobfree.com

PROFESSIONAL EXPERIENCE:

EveryLife Foundation for Rare Diseases, Washington, DC (remote) Spring 2022-Present Rare Disease Legislative Advocates (RDLA) Intern

● Maintain and update database of thousands of advocates using Salesforce and Salsa Engage.

● Research current legislation and policy issues impacting the rare disease community and write and create the monthly RDLA newsletter.

● Outreach to rare disease advocates and organizations and recruit advocates for advocacy events like Rare Across America.

● Research, write, and create new resources on policy issues of importance to the rare disease community including one-pagers for the advocacy event, Rare Across America.

YMCA Camp Mason

Outdoor Educator, Program Manager, & High Ropes Coordinator Summer 2018-Present

● Host groups of students and teach them skills such as gardening, composting, archery, survival, ecology, and teambuilding.

● Work with a team to safely setup and run high ropes courses in an effective and safe manner.

● Inspire students to connect with not only themselves and classmates, but with the activities.

● Work to maintain infrastructure and keep everything clean, orderly, and safe, as well as writing reports on what events or teaching styles went well or did not go well so we can always improve.

POP! Medical PTSD Fall 2021-Summer 2022

Social Media Manager

● Create material to garner attention for medical PTSD

● Organize events for patients to attend both virtually and in-person

● Host virtual healing circles where patients discuss various needs within their communities Democracy Matters Fall 2020

Program Coordinator

● Create nonpartisan events to educate students about political topics such as the electoral college, voter rights, the Supreme Court, presidential debate watch parties, how to register to vote, and what students will see on the ballot.

● Manage social media promotion through the internship specific pages on Facebook, Twitter, and Instagram.

● Responsible for weekly reports to my supervisor about the events we held.

● Established the Democracy Matters organization on my campus, thus continuing these events and internship opportunities in the future. Hartwick College Residential Life, Oneonta, NY Fall 2019-Spring 2020 Residential Assistant

● Instill a positive community on my floor through leading by example..

● Create four programs and four community builders per semester to educate residents and provide social interactions. Delgado for Congress, Oneonta, NY Fall 2018

Campaign Intern

● Maintain a communication and outreach database for all voters in District 19.

● Solicit potential voters through phone calls and canvassing by promoting Delgado’s policies.

● Responsible for maintaining office functions including, providing voter support, and managing volunteer responsibilities.

● Market and promote speaking events Delgado hosted via social media, and through college campus promotion.

● Contributed to the successful election of Antonio Delgado with 51% of the vote. Hartwick College Community, Involvement, and Volunteerism, Oneonta, NY Fall 2017- Fall 2019 Special Projects Coordinator

● Coordinate community service opportunities such as community cleanups, fundraising for homeless shelters, and fundraising for animal shelters

● Organize 3 Days of Service, an event where students could participate in a myriad of community service events & 5 Blood Drives

● Support over 25 student and club led volunteer events efforts on, or in the local Oneonta area. EDUCATION:

Hartwick College, Oneonta, NY Fall 2017-Fall 2020

Bachelor of Arts in English & Political Science; Educational Studies Minor George Washington University Spring 2022-Present

Legislative Affairs Master’s Program

OTHER EXPERIENCE:

Published Book: Disposed: A Story of Chronic Illness During the COVID-19 Pandemic Spring 2022 YARR Speakers Bureau Member Fall 2018-Present

● Experienced speaker on policy, advocacy, and rare disease patient experiences:

YARR Summer Series 2022: Prescription Drug User Fee Agreement (Summer, 2022)

One Rare: How to Advocate for Legislation from Home (Summer, 2020)

Our Odyssey: How to Prepare For College With A Rare Disease (Summer, 2020)

Rare Disease Week in Washington D.C.: How You Can be An Advocate Through Y.A.R.R. (Spring 2020)

OHF Hyperoxaluria Workshop at Harvard Medical School: How You Can be An Advocate Through Y.A.R.R. (Summer 2019)

Rare on the Road: Boston at M.I.T: How You Can be An Advocate Through Y.A.R.R. (Spring 2019) D.Pezzetta 1 of 2

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