Medical Nurse
Resume:
MyGirlsBlood
Hemophilia
Achieving more Rapid Treatment International social network
2010
nonprofit & charity 501 (c) (3)
World Congress
through a High Trust Network
***************@*****.***
www.poolingblood.com
Abstract
Cheryl D Ambrosio
Parent, Author, Founder MyGirlsBlood, 501 (c) (3) Seattle, WA USA
Buenos Aires,
Arthur R. Thompson, MD, PhD July, 2010
www.mygirlsblood.org
Puget Sound Blood Center, 1973 2008
Hematology, University of Washington, Seattle, WA USA
ABSTRACT
1
- Memoir covering thirty-year time span, Pooling Blood, (D Ambrosio, C.N. iUniverse, 2010)
- Bleeding episodes of two girls with severe factor V deficiency (only FFP; no factor products avail.)
- Hospital physicians routinely ordered unnecessary tests, delaying treatment
- Interpersonal dynamics improved when Puget Sound Blood Center s HTC became involved
- Decreased time for administration of FFP from up to twelve hours to under two to three hours
- Developing key relationships prevents delays in service delivery
Negative Spiral Challenges HTC Intervention
2 3 5
(3) request emergency assistance
end Doctors are trained to from HTC (or done initially instead of
diagnose a problem before (1) where it is anticipated that medical
girl or
provider will not support)
treating it. woman
resolution of with
contact HTC bleeding
bleed disorder
Few cases of girls and
(2) request not
INTERVENTION LOOP HTC
HTC Services
women with bleeding understood, or
start Medical assessment and
disorders. denied
bleeding treatment of bleeding episodes
episode (1) request for
Diagnostic testing and
Developing relationships medical support (4) Consultation provided
specialized coagulation studies
(24 x 7) and services
is considered soft-stuff. provided as required Resource coordination
NEGATIVE treatment to 24-hour triage and consultation
Standing orders are not medical
SPIRAL resolve bleed is provider
Home infusion training
always acknowledged
visit to ER delayed
4 Genetic counseling and carrier
testing
Clinical trials
When treatment is delayed, and standing orders ignored, bleeding
doctor doesn't understand Individual and family education
continues, creating a vicious cycle. One way to stop the bleeding is
about girls and bleeding and counseling
disorders/hemophilia Distribution of FFP, factor and
for an intervention from a Hemophilia Treatment Center. This
clotting concentrates
results in more rapid treatment, thus interrupting the negative spiral.
People with bleeding disorders Medical /
Medical /
6 medical
must become proficient Social
caregiver
Out-patient organizations
nurse for girls with
in developing
bleeding
urgent care
disorders
physician social worker
dentist
successful relationships girl or
woman with
with many people
bleeding
Family
local disorder
physician of
hemophlila psychologist
in many roles
Friends
specialty girl or treatment
pediatrician
woman center
Community
with
bleeding
disorder local bleeding
disorder
local HTC
foundation
hematologist
employers
and
IV or lab tech and
Prepare a woman
Medical Internet, with
admitting clerk
medical resume
bleeding
dietician
/ In-patient girl or
disorder
woman with local youth
bleeding groups and
including
disorder church
other girls
and women
specific information for
physician /
with
blood bank teachers
Write it down and keep it with you
in case you cannot speak for yourself.
* Templates available:
www.mygirlsblood@.org
Establish a standing treatment plan with your ER, if possible.
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